I will come back to delve into this further, but the tilt table test was done today. She threw up afterwards, 3 times, and the doctor told us that is not normal. He said she has clear POTS based on the testing. The doctor advised 2 medications. One to lower blood pressure and the other to act as a stimulant to the central nervous system. He also advised starting the medicine slowly, and using compression socks daily.
Again, I will come back and fill in more details, but I wanted to get this down quickly.
---Follow up a little over one week later---
We have started with compression sleeves at about 20 for pressure. These seem to be helping, or we are just lucky. We're being very careful to make sure she gets her fluids before getting out of bed, and lots of salt! We've also been trying different electrolyte drinks and powders. So far, she hates all of them, except some gatorade. So, the G2 is lower in sugar, lower in artificial junk, and that is our current choice (plus all usual liquids). This is helping...I think.
We haven't started the medicine yet, as we wanted to see how she responds to the other things, when applied consistently.
---Follow up in April ---
The tilt table testing caused some off kilter balancing in her system. She threw up immediately after the test, and multiple times that day, and then the following week. Ever since, she has had constant motion sickness in vehicles, which she never had before. She experiences the nausea daily, which is new since that test, and she is still upset about the actual testing experience. She would not recommend it or advise to another EDS-er in her situation.
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