Bilateral Custom Support Vest has arrived - Ehlers Danlos Syndrome posterior shoulder

Well, it's finally here! After many weeks of waiting, back and fourth measuring, and more weeks of waiting...Hooray! We worked with the fantastic people at Scheck and Siress (Angela and Arnold) to come up with this hopeful solution for the ongoing bilateral posterior dislocations that occur multiple times each day. The vest was designed so that my daughter can put it on and snug it up herself with straps at front of each arm and on each side of rib cage as well as a zipper front. It was designed with as much breathability as possible, though it is still somewhat hot, heavy, and constrictive. It needs to be somewhat snug and firm to be supportive, so it's a good mix.  The bottom photo shows two inserts that sit inside the vest (you cannot see them from outside). They are a firm plastic that help sit right behind the scapula, in hopes to prevent some dislocations. These have been custom molded to fit her back, to make them as comfortable as possible.  They are removable, as well, and the velcro can be taken off and put on the front if they were to be placed on the back of the vest for comfort, for any reason.  Obviously, if we did that, they would not provide as much help, but it's good to have versatility.

We have been to many doctors and this is or current "last hope". No one has a better idea for her, so we can pray that this really helps. Day 1 didn't go great, but getting used to a new brace will always take time to adjust to. Our hope is that this will help her with ongoing good posture and proprioceptive (spelling?)  input to aid in her muscles holding those lose joints together. I hope and pray that this will allow her to do more. It's too soon to tell, however, so I will have to come back and update you in a few months. Please let me know if you have any questions. I know the people at Scheck and Siress said they have made similar devices for one shoulder, but this is the first bilateral that this team has made.  They seemed to have thought of everything and they really did a fantastic job.
As far as bulk, it is very streamline for a product like this, but it does look a little "football player" mode on a young teen. My daughter opted to just wear it over a cotton shirt without trying to hide it under sweaters, and more power to her. She's one brave young woman.