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Custom Brace
Immobilizer
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Shoulder Instability?
Disney World + EDS
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A Mom Epihany : Why so resistant to home schooling my child wth Ehlers Danlos Syndrome?
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I think I just figured out why we have been resistant to homeschooling. We have/had a vision of what our daughters life would be like and b...
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Bilateral Custom Support Vest has arrived - Ehlers Danlos Syndrome posterior shoulder
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Well, it's finally here! After many weeks of waiting, back and fourth measuring, and more weeks of waiting...Hooray! We worked with th...
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School Days with Ehlers Danlos Syndrome - Got a 504?
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One of the first steps in getting safe procedures in place at the schools is to work with the appropriate school team to ensure a 504 Health...
DonJoy Shoulder Cradle for night time
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First, we laugh when we see this photo because it is not entirely a restful sleep when your arms stick straight up in the air. That is a ...
Penagain Y shaped pen for writing
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We tried every writing device and combination you could imagine for my daughter's hands and the hyper extension/low muscle tone. She d...
Slant board - adjustable and collapsible
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Early on, my daughter's occupational therapist recommended the use of a slant board to help support her wrists. We found this affordab...
Shoulder Taping with Leukotape - our experience
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Almost every PT we have seen wants to try taping the shoulders. For many people with ehlers danlos syndrome, this is a daily help. For my ...
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