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POTS - and we are welcomed to another Ehlers Danlos Syndrome partner in crime

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For me to research later : http://www.dysautonomiainternational.org/page.php?ID=30 For my own experience, I had symptoms of POTS in my grow...

Homeschooling and Bracing - is it helping?

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You know what. It IS helping! Kiddo still battles with shoulder instability, but by staying in a dual enroll program where she only does 1 c...

To research : Reconstruction in Chronic Shoulder instability

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Open Reconstruction of the Anterior Glenohumeral Capsulolabral Structures with Tendon Allograft in Chronic Shoulder instability article link...

A Mom Epihany : Why so resistant to home schooling my child wth Ehlers Danlos Syndrome?

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I think I just figured out why we have been resistant to homeschooling. We have/had a vision of what our daughters life would be like and b...
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Bilateral Custom Support Vest has arrived - Ehlers Danlos Syndrome posterior shoulder

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Well, it's finally here! After many weeks of waiting, back and fourth measuring, and more weeks of waiting...Hooray! We worked with th...
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School Days with Ehlers Danlos Syndrome - Got a 504?

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One of the first steps in getting safe procedures in place at the schools is to work with the appropriate school team to ensure a 504 Health...

DonJoy Shoulder Cradle for night time

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First, we laugh when we see this photo because it is not entirely a restful sleep when your arms stick straight up in the air.  That is a ...