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Showing posts with label ehlers danlos syndrome. Show all posts
Showing posts with label ehlers danlos syndrome. Show all posts

9 days no walking

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What starts innocently as one day of extra walking followed by a double ear infection and cold seemed to snowball into inability to move f...

Walt Disney World Thanksgiving Trip From the Wheelchair

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I will come back with more tips, but the MAIN tip I can give is to PLAN ahead! Fast passes are an absolute must for someone with chronic ...

EDS Slowing You Down, Too?

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Feeling like EDS (Ehlers Danlos Syndrome) is slowing you down? Yeah, we get that! Quick update, to start the school year, Bean had good mo...

Reference given for the Physical Therapists

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While visiting the experts today at Advocate Lutheran General Hospital, we were given a packet to pass along to the local Physical Therapi...

From High School to College?

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Bean's 9th Grade Art Project If navigating the smaller scale of a middle school was too much and conquering a high school proved to ...

What does hypermobility look like at 39?

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I can recall with vivid clarity that it was a fall morning and I was putting my arm out to stretch when I heard a pop. My neck was "o...

Waiting out these injuries takes STRENGTH!

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Yesterday, just as I was settling in to my work, my child texted to tell me that her hip tore badly, she couldn't move her leg, and the ...

Crash and Walk Again

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So, there wasn't a literal crash. It was just a decline that became desperate starting in January after climbing on a water obstacle c...

Day 14 of 1 A Day in May Raising Awareness with Tay

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Click, copy, and share! My 14 year old Zebra is going to join the ranks of sharing her one a day expression of what it's like to have...

Day 13 of 1 A Day in May Raising Awareness with Tay

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Click, copy, and share! My 15 year old Zebra is going to join the ranks of sharing her one a day expression of what it's like to have...

Day 12 of 1 A Day in May Raising Awareness with Tay

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Click, copy, and share! My 15 year old Zebra is going to join the ranks of sharing her one a day expression of what it's like to have...

Day 11 of 1 A Day in May Raising Awareness with Tay

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Day 11 features a guest zebra...my 14 year old niece Nikita! She shares her own drawing and sentiment to help raise awareness in May. Cli...

Day 10 of 1 A Day in May Raising Awareness with Tay

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Click, copy, and share! My 14 year old Zebra is going to join the ranks of sharing her one a day expression of what it's like to hav...
1 comment:

Day 9 of 1 A Day in May Raising Awareness with Tay

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Click, copy, and share! My 14 year old Zebra is going to join the ranks of sharing her one a day expression of what it's like to hav...

Day 8 of 1 A Day in May Raising Awareness with Tay

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Click, copy, and share! My 14 year old Zebra is going to join the ranks of sharing her one a day expression of what it's like to have...

Day 7 of 1 A Day in May Raising Awareness with Tay

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Click, copy, and share! My 14 year old Zebra is going to join the ranks of sharing her one a day expression of what it's like to have...
2 comments:

Day 6 of 1 A Day in May Raising Awareness with Tay

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Click, copy, and share! My 14 year old Zebra is going to join the ranks of sharing her one a day expression of what it's like to have...

Day 5 of 1 A Day in May Raising Awareness with Tay

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Click, copy, and share! My 14 year old Zebra is going to join the ranks of sharing her one a day expression of what it's like to have...

Day 4 of 1 A Day in May Raising Awareness with Tay

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Click, copy, and share! My 14 year old Zebra is going to join the ranks of sharing her one a day expression of what it's like to have...

Day 3 of 1 A Day in May Raising Awareness with Tay

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Click, copy, and share! My 14 year old Zebra is going to join the ranks of sharing her one a day expression of what it's like to have...
1 comment: